Feeling defeated…

1 Nov

As you all know, my diet has been REALLY REALLY good since the beginning of September when my friend started cooking at my house. All kinds of GFV yumminess being consumed and frozen for those on-the-run meals.

So you’ll understand why I’m so puzzled as to why I’ve been SUPER SICK since Sunday. A while back I had posted about a new health issue that I wasn’t prepared to talk about – basically I found out that my fallopian tubes are, in the words of the doctor, “a train wreck”. In short, I have bilateral hydrosalpinx – he says caused by my endo (but I have my doubts – more on that later**). It is so bad that my tubes, which are normally supposed to be the width of a human hair, are now dilated to an inch in diameter, the entire length of the tube and filled with who knows what. The doctor said they are some of the worst he’s seen and given this chronic infection in my pelvis, he’s surprised I’m not sick – like really sick.

Except, the funny thing is I DO get sick when I get my period – and have for a couple of years. On days 2 and 3 of my cycle, I get bloated, achy and chilled. One time it was so bad (before I knew what it was) that I made Ian take me to the hospital where they kept me all day, heavily medicated on painkillers, did all kinds of tests and said they didn’t know what was wrong with me. A few other times I went off-call ’cause I just didn’t know what was going on and I just felt awful. Lately though, it’s been manageable – and better since my diet changes.

This month though, has been the worst it’s ever been (except for the time I went to the hospital). I was so bloated I looked pregnant and my entire abdomen hurt to the touch. I am nauseated (haven’t really eaten much in 3 days) and any time I do eat it gives me terrible intestinal cramps. I feel like I have the flu – weak, achy, chilled, fever. And yet, when one of my midwife friends came to do blood work on me yesterday, the results showed ZERO infection. Absolutely no increase in white blood cells. Being the medical mystery that I am however, I am not surprised – when my appendix was taken out I had no increase in white blood cells; when I went to the hospital so sick two years ago, no increase in white blood cells. I wonder if my body is just so used to being chronically inflammed that it takes more than a little pelvic infection to register with my immune system.

Ugh.

The solution that they offered me was to take my tubes out. Not an option I’m keen on – up until the past few days, I have really liked my tubes and want to keep them around as long as I can. But, if this is going to be an ongoing thing – my tubes and I are going to have to revisit their tenancy agreement.

Being the hippie that I am, and holding my firm belief that the body can heal itself if given a chance (you’ll recall last year during my GVF trial that I had NONE of these sickness symptoms that final month), I am not giving up. I will keep eating GFV and doing things to promote wellness and healing in my body. And as a further part of that little endeavour, I am flying to Florida in 10 days for some physical therapy, not unlike intensive Osteopathic treatment.

Clear Passage claims to be able to break down adhesions and scar tissue from endometriosis, previous surgeries, IBS and a whole host of other things, including treating blocked tubes. They do this by doing some pretty deep, intensive, abdominal massage for 4 hours a day (2 in the morning and 2 in the afternoon) for five days. Some people might call it quackery, but given what I know about massage and osteopathic treatment, I am hopeful for SOME kind of improvement.

And as a nice bonus, my mom is coming with me – so even if it is total hooey, I’ll still have a nice week in Florida with my mom. And after how I have felt this week, that will be a nice treat!

Though I am hopeful about the continued diet and the treatment in Florida, this sickness has me feeling pretty defeated. Even more so the fact that I can feel so terrible and it doesn’t even register with my body. That is just not fair.

 

**As to why my tubes are blocked, I have my suspicions that it is a result of the hysterosalpingogram that I had done in December 2009. At that time, I was told that my tubes were nice and normal in size and shape and open. In August of 2011, the ultrasound showed a train wreck. How does this happen? The doctor said that an infection from that is highly unlikely….but, you know me! I seriously wonder if my immune system didn’t just over-react to the dye in my tubes (given my auto-immune pre-disposition to attack everything in sight) and cause the blockage. He thinks I’m crazy. My GP knows how messed up my body is and she also had the same question. I guess we’ll never know….

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3 Responses to “Feeling defeated…”

  1. Jen November 2, 2011 at 6:15 am #

    Hugs Rhea. I am praying that this therapy in Florida will help and that you will experience healing soon. If you ever need anything you know where I am.

  2. Laura November 7, 2011 at 3:31 pm #

    Oh Rhea, I can feel your sadness coming through this post. I hope your time in Florida is helpful and healing for you and that you can experience “the peace that passes understanding.” Love you!

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  1. Clear Passage – Day 1 | Going gluten-free and vegan – one day at a time. - November 16, 2011

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